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 WISH FOR TIAGO

 

MATERNITY, CHILDHOOD AND FAMILY PROTECTION ASSOCIATION – JOHN AND MARY. FOR THE PAST FEW MONTHS, A BOY NAMED TIAGO HAS BEEN WITH US. HE IS FOURS YEARS OLD AND HAS PROTEUS SYNDROME, KNOWN AS SYNDROME OF A BIG FOOT – A RARE DISEASE.

 

HIS FAMILY LIVES IN EXTREME POVERTY; THEY LIVE IN A LITLLE HOUSE WITH EIGHT PEOPLE.

 

HIS FEET INCREASE, ONE MORE THAN THE OTHER, AND THEY WILL GROW EXPONENTIALLY. THIS IS THE REASON HE NEEDS MULTI - DISCIPLINARY CARE.

 

IN BRAZIL, THERE ARE ONLY THREE CASES AND WE HAVE LITLLE EXPERIENCE WITH THIS PATOLOGY.

 

APMIF JOHN AND MARY WOULD LIKE INTERNATIONAL AID. PERHAPS, SOME ONE HERE MIGHT KNOW SOMETHING ABOUT THIS SYNDROME OR OF A NEW TRATMENT, WHERE ONE CAN BE FOUND OR EVEN IF IT EXISTS. THIS IS A VERY SAD CASE...

 

THE DOCTORS IN BRAZIL SAID THE SOLUTION IS TO AMPUTATE THE FOOT, WHICH GROWS MORE, BUT TIAGO´S PARENTS HAVE RESISTED, BECAUSE THE BOY, AS THEY SAY: WALKS, RUNS, PLAYS FOOTBALL AND SO ON... SO WHY AMPUTATE, THEY ASKED. BUT UNFORTUNATELY, THEY HAVEN’T THOUGHT ABOUT TIAGO’S FUTURE.

 

IF ANY OF YOU WOULD LIKE TO AID OR ASSIST, PLEASE, CONTACT MRS NEUZA, MRS HELENA AND MISS VIVIANE WHO REPRESENT THE ASSOCIATION JOHN AND MARY IN THIS SUMMIT.

 

                                                             THANK YOU

 

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